Sean Morris - Ruli, Rwanda
Last week was a very productive combination of survey data collection, a follow-up visit with the Nyange PLWHA (People Living With HIV Association) to discuss their farming association proposal, and observation of village screenings for children <5 years old in the countryside. At the screening of Gitaba village, Theo and I had a tremendous discussion with the mothers in attendance. They had many wonderful ideas for improving the community nutrition program. One of these suggestions was a mandatory meeting for their husbands, in order to sensitize them to the importance of their child’s health, fiscal responsibility, family planning, etc. – this will absolutely find its way into my final report.
We shared our ideas for SOSOMA production in Ruli, and how this would make SOSOMA affordable for their families. When we ask the mothers in these rural villages whether or not they can buy the industrially produced SOSOMA, maybe 5-10% raise their hands. The price of SOSOMA is simply too large a percentage of their monthly income to justify purchasing. Instead, they are forced to make some bastardization of SOSOMA on their own: they buy the cheapest of the three SOSOMA grains (usually sorghum), grind it into flour, mix with water, and call it SOSOMA. This homemade concoction lacks the most important of SOSOMA’s three constituent grains, soya, which contains a complete package of essential amino acids necessary for growth and development. Suffice it to say, these mothers need a more affordable, fortified SOSOMA option. My hope is that through the development of Ihangane Project farming cooperatives, the hospital will have a source of SOSOMA grains, which it can then process, fortify, package, and distribute to the far reaches of the Ruli Hospital catchment area.
At this same Gitaba village screening I witnessed the weighing of children <5 years old, as I always do. Most of the children were healthy, progressing at an appropriate weight for their age. One infant, though, went to the scale, and it was obvious that she would be in the “red” on the growth chart: I could see clearly the outlines of the bones in her tiny arms and legs, and her eyes were barely able to open from lack of strength. Sure enough, this one-month-old child was deep into the “severely malnourished” portion of the growth chart. Strangely, the health workers asked me for my opinion on what to do for the child - I told them they should probably refer the child and her mother to the hospital immediately. When this directive was translated to the mother, she became visibly shaken and nervous. She told the health workers that she might be able to bring the child next week, but wasn’t sure how she could find the money. You see, this mother is 18 years old, an orphan, living with a distant relative, a secondary school dropout (after she discovered she was pregnant), and her home food security is essentially non-existent. Where could she possibly find the money to pay for services at the nutrition rehabilitation center, which, by the way, are not covered by government health insurance? I knew her response meant that she couldn’t afford to keep her child alive, so “might go next week,” meant “can’t go next week, or ever.” I told her not to worry about the costs, just to get to the hospital as soon as possible. I said that I would pay for any expenses at the hospital, and that her child’s life depended on her getting to the hospital as quickly as possible. She agreed, and I asked the Gitaba CHWs to supervise her to make sure that she made it to the hospital on Monday.

Sure enough, on Monday morning, after a 3-hour walk with a 2.5-kilogram infant in her arms, Sarafina arrived at Ruli Hospital. Her little one, Oliva (photo on right), looked no stronger than when we had seen her on Friday at the village screening. Theo and I walked with them to the health center, where they were given a preliminary check-up, and a referral to urgent care in the hospital. Theo’s skills in negotiation led the way to the front of very large lines at both the health center and hospital (yes, this presented an ethical dilemma, cutting in line at a developing country hospital and all, but this child required immediate attention). Soon, Oliva’s pulse was taken, and an IV was ordered: in addition to being severely malnourished, Oliva was severely dehydrated. What came next was a very difficult task for the nurses: locating a vein in the tiny, skeleton-like arms of Oliva. They tried 10 times, unsuccessfully, in each arm, and several times in each foot. At each attempt, Oliva let out a soft cry, barely audible, but with the look of a infant screaming at the top of its lungs - she was simply too weak to cry. Finally, the nurses had to shave a small patch of Oliva’s head, and were able to successfully insert the IV in her superficial temporal vein (thank you Google). Oliva is now stable, and taking therapeutic formula, in addition to breast milk.
This whole experience with Oliva and her mother has been both gut wrenching, and eye opening. Being able to follow Oliva’s referral from the screening at the village level, to the health center, to the hospital, to her ultimate destination (the nutrition rehabilitation center with her mother) sheds light on the costs and treatment measures associated with this extreme level of malnutrition. The idea that mothers of children in the “red” have to weigh the survival of their child against their capacity to pay for treatment is alarming. The Ihangane Project would like to implement some system of work-exchange, where extremely poor mothers staying with their child at the nutrition rehabilitation center could, perhaps, cultivate a plot of hospital land to reduce the costs of treatment. This could provide participant mothers and their children with nutritionally dense vegetables, and, more importantly, it could increase the likelihood that they will follow through with the referral and get their child into the nutrition rehabilitation program.
In addition to village screening observations, I was able to reconvene with the Nyange PLWHA last week to discuss their proposed farming association. Their initial proposal was basically a list of material needs. I tried to open a dialogue with the group to discuss the organizational considerations they needed to make before receiving the funds and beginning this venture. Would they use the same leadership board as their existing association? Did they have a plan for entry into a market for income generation in the future? What were their ideas for a Nyange Farming Association code of ethics? What will be their protocol for accepting new members into the group? This meeting was very helpful in getting the group’s ideas for the sustainability of their proposed project, and laying out the expectations of the Ihangane Project. In exchange for the start-up costs of the farming association, the Ihangane Project would expect donation of a certain quantity of SOSOMA grains for hospital production from the land. I asked the group if I could see the property that they were interested in buying, and they said this would be no problem – it was five minutes away from the health center.

The land is incredible – not only is it near the site of the group’s monthly meetings, it includes a small house for storage of surplus crops and equipment, many small coffee plants started in the shade, access to water (even in the dry season) less than 200 yards away, and it’s on a very gradual slope (a rare trait in arable Rwandan land). The property is quite large, as well – roughly 2 hectares (photo on left). This would provide ample room for diverse crop production (both for the group’s nutrition, and for income generation), and SOSOMA constituent production for the hospital. I am meeting with the group, once again, on July 28th. I intend to bring various stakeholders from the hospital to get their impressions of the potential of this farming association, and the quality of the proposed space.
Theo and I have finished entering the 100 CNW surveys that we were able to gather this summer. Our observation of village screenings, and home-visits by CNWs is ongoing. I’m preparing my soul for a fun-filled week of data analysis next week! Based on this information, I will present my preliminary recommendations to the hospital in two weeks. This will give me some time to gather hospital stakeholder input and feedback for the recommendations in my final report.